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Above & Beyond Survey 2010

The information below lists results from the 2010 ABOVE & BEYOND survey. The ABOVE & BEYOND survey is distributed annually throughout the WNY community. This survey is used  to help Parent Network learn what parents and our community identify as needs, concerns, and best arrangements for receiving our services.  460 people responded in 2010. Thank you to all who responded!

The results of this year’s ABOVE & BEYOND survey will help Parent Network provide more relevant and accessible services to the community.

·          We are pleased to continue to offer information and education on Autism Spectrum Disorder (ASD) through our collaboration with CASE: Center for Autism Support and Education by offering a variety of workshops to help families and professionals better understand ASD (see Workshop Calendar for upcoming CASE workshops).
 
·          Through our recently awarded Opening Doors Project, we will be able provide educational workshops, information and resources to health care providers across Western New York on programs and services available in the community for individuals with special needs.
 
·          Through our Information & Referral Services we will continue to link families and individuals with information and resources that they are looking for about disabilities, community resources and services available.
 
·          We will begin to offer select workshops online (viewable from our website) to families who are not able to attend due to barriers. 

 Who responded to this survey (who are you?)

53%  Parent of an individual with special needs
26%  Professional*
12%  Foster Parent
3%   Student
5%   Other

*Professional Title

1.  Educator/Teacher
4.  Social Worker
2.  Special Education Teacher
5.  Speech Specialist
3.  Medicaid Service Coordinator
 

My child has a classification of:

36%  Learning Disability
2%    N/A
20%  Developmental Disability
1%    Suspected
14%  Emotional Disability
10%  Other*
2%    Gifted
 

*Other Disabilities

31%  Autism
2%    Specific Learning Disability
19%  Intellectual Disability (MR)
1%    Traumatic Brain Injury
10%  Speech/Language Impairment
1%    Orthopedic Impairment
6%    Other Health Impairment
1%    Emotional Disturbance
5%    Dev. Delay (Early Childhood)
1%    Visual Impairment
3%    Deaf- Hearing Impairment
9%    Other
3%    Multiple Disabilities
 

I like to receive information regarding services for individuals with Special Needs by:

70%  Mail
5%    Television
65%  E-mail
5%    Library
29%  Special Insights Newsletter
2%    Radio
18%  Internet
1%    Other
7%    Social Networking (ex. Facebook)
 

In the past year, I have received information on Parent Network's services by:

 

55%  Mail
15%  School
37%  E-mail
13%  Friend/Family
33%  Flyer
11%  Work
20%  Agency
6%   Table at an Event
18%  Workshop
5%   Information and Referral
17%  Internet
2%   Library
17%  Newspaper
10%  Other
16%  Special Insights Newsletter
 

In the past year, I have used the following services offered by Parent Network:

57%  Workshop/Seminar
2%   Library
17%  Information and Referral Call
23%  None
11%  Conference
 

A Catalog of Parent Network trainings and services would be most useful to me:

44%  Paper Copy
26%  Viewable/Downloadable from Website
23%  An email link
8%    Upon Request

How often do you use the public library to find information and resouces regarding Special Education:

46%  Never
5%   Weekly
34%  A few times per year
4%   Yearly
11%  Monthly
 

I know of other local organizations, programs or services that are available to benefit my child:

38%  1 to 2
16%  More than 10
17%  3 to 4
17%  None
12%  5 to 10
 

 
Strongly Disagree
Disagree
Undecided
Agree
Strongly Agree
My healthcare provider gave me information about local organizations, programs or services that are available for my child with special needs.
 
29%
 
28%
 
16%
 
  21%
 
 7%
School staff and/or special education services have helped me and /or my family understand how much support is available for my child(ren).   
 
10%
 
19%
 
14%
 
   39%
 
 18%
At your school, you have been asked for (or given the chance to share) your opinion about how well special education services are meeting the child’s /student’s needs.   
 
13%
 
14%
 
17%
 
  38%
 
 17%
Over the past year, special education services have helped me and /or my family to be able to evaluate how much progress is being made by my child/student.
 
7%
 
10%
 
21%
 
  44%
 
 17%
The School explains what options families have if there is a disagreement with a school decision.    
 
11%
 
21%
 
20%
 
   39%
 
 11%

If your child with an IEP has graduated or left school, what is he/she doing now?:

39%  Not in a program
19%  Has a job
19%  At a suppportive site
10%  At a secondary school

What would you most like to learn to help your child? (exerpts):

  • Better understanding of the psychological report- such as, what test scores mean, what can invalidate scores, how do they control for test being skewed by features of disability, what is the difference between psych and nuero psych, etc.
  • Lean how to guide or help teenager/ young adult with daily and occasional stress and how to deal with situations now and in the future. 
  • Behavior supports, communication supports, total communication approaches for autism spectrum disorders; more advanced autism training and social skills
  • Future planning and activities for adults? Are there more programs available after high school? What options exist for living arrangements?
  • What do you do when you feel you have done all you can? Where do you go from there?
  • How to effectively have the schools meet their obligations